Rare Disease Day
Date: tue, 28th feb 2017

The Rare Disease Day 2017 theme is research. Rare disease research is crucial to providing patients with the answers and solutions they need, whether it is a treatment, cure or improved care.

A disease or disorder is defined as rare in Europe when it affects less than 1 in 2000. One rare disease may affect only a handful of patients in the EU, and another touch as many as 245,000.

There are more than 6000 rare diseases. On the whole, rare diseases may affect 30 million European Union citizens. 80% of rare diseases are of genetic origin.